Therapies for Rett Syndrome



Once a diagnosis of Rett Syndrome is confirmed for your child, you must take into account the various therapies which are available to you. One of those therapies is speech therapy. Speech is the most important form of communication, and it has the capacity to severely limit some kids with the disorder. However, speech is not only accomplished through word-of-mouth. Other forms of communication, such as non-verbal communication, are an option. Additionally, there are other methods of augmented communication. Picture communication is an excellent choice for young people who are affected by the disorder. It allows them to express themselves in a manner that they are comfortable.

Hydrotherapy is a popular option for many families in the UK. It provides a unique way for a person to strengthen muscles without the use of weight training. Those affected by Rett Syndrome are unable to balance or lift weights in order to strengthen the muscles. Water allows for the person to conduct movements without risk of physical injury. Although this is an ideal alternative to try, the patient must be closely monitored at all times. Drowning is definitely possible if the person is left alone without assistance, especially if they are unable to properly use their arms and legs due to the disorder. Close monitoring must take place in shallow water therapy as well.

Atrophy is a condition that occurs when the muscles are not used regularly. Quadriceps, calves, and back muscles will shrink if movement is limited by Rett Syndrome. This means that physical therapy is an absolute must. Specialised trainers will work hard to monitor patients as they work on motor and balance skills. Rubber bands are often used instead of weights to promote increases in strength. Massage therapy is used to increase sensation in limbs as well. Muscle atrophy can be reversed with the right physical therapy plan. Although it may take weeks or months to see results, the overall benefits are great. Sleep patterns will start to improve, and basic motor skills will show improvements over time. There are quality physical therapy centres located across the UK.

Occupational therapy is designed to define interventions and goals for patients with Rett Syndrome. Basic life skills become increasingly difficult as time moves forward. This means that setting goals for basic skills like chewing, dressing, brushing teeth, and recreational activities is essential. Occupational therapy has the capacity to give girls much more control over involuntary movements. It allows them to start to use their hands and feet in a much more purposeful manner. This allows allows the patients to learn ways to keep their hands from constantly contracting when they are not being used.

rettsyndrome