Welcome to RSAUK's Website
Welcome to RSAUK's website. Over the next few months we will be adding information and providing the latest developments in therapies and research. Please do get in touch contact us or e-mail us info@rettsyndrome.org.uk if you require any information not covered in our website.
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives. Rett syndrome is the most common genetic cause of severe disability in females.
We are a national charity seeking to make a difference for people living with Rett syndrome. We aim to do that by:
- Identifying people with Rett syndrome. Rett syndrome affects 1:15000 females and considerably few males
- Offering practical help, friendship and support to people living with Rett syndrome as individuals, families and other carers and supporters
- Providing high quality up to date informa
tion about best practice in treatment and care - Promoting greater understanding and awareness of Rett syndrome amongst the general public and amongst medical professionals.
- Funding research into the cause and treatment of Rett syndrome and towards an eventual cure
We rely almost entirely on donations and grants for our income. Please help us to make a difference.
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